I used TS for 40+ years am now almost 42 months into TSW with 90 per cent of my body healed and I use no moisture anywhere except for an occasional dab of white palm oil on my hands after doing the dishes.
In early 2011 when my hands were cracked and sores everywhere from TSW, I went months with no moisture on them and could not bend or use them to do anything. After months of no moisture and letting them stay dry and cracked, I finally put a thin layer of white palm oil on them with soft vinyl gloves that I changed twice a day and they completely healed up with soft baby skin as long as I kept the gloves on. I only took the gloves off for bathing and then changed to a clean pair which was twice a day. I did this until the early 2013 which was about two years total and never had problems with them as long as I kept the gloves on but if I tried to go without for even an hour, they cracked and got sores again. Once they were healed enough from the tsw I took off the gloves and they were fine with no moisture.
I’ve been in the ITSAN forums for two and half years daily and have seen several members heal up nicely while using moisture or not using moisture, either way they heal but we also say we know of nothing at this point to speed up healing.
Dr. Rapaport also has seen thousands heal while using moisture so I’m not sure how it the Japanese doctors come to the conclusion that no ones heals totally while using moisture of that is what they are saying? Please clarify on this and thanks! I was healed pretty much by my 27th month and really think time was the only factor in my healing.
There are a few new TSW sufferers that condemn the ones who use moisture and say it will hinder healing and use you and the Japanese doctors to back this up but I personally have not seen it hinder healing in my case nor many others who used moisture and healed up nicely.
I personally don’t care one way or the other what a sufferer uses on their skin if not harmful and as long as they can keep their wits about them and get through TSW as there are some suffers who threaten suicide from the stress and length of it all as you well know from your years of expertise in this field. We also remember you saying to use a little moisture for movement and comfort.
My concern right now is that the ones who are less than a year into TSW advise others and especially new ones to TSW that no moisture is the only way to help the skin, speed TSW up and prevent flares etc. but I’m also seeing long-term users who no longer moisture and still get a nasty later flare of a week to months with redness, oozing and rashes after months of nice skin.
Maybe you clarify more on this topic for those who panic over the moisture topic? Thanks. 🙂
It is not a so complicated problem. Some patients become addicted by topical steroids while others not. It is the same thing that there are some patients whose recovery can be accelerated by disuse of moisturizers. I admit that it is a fruitless effort for the others to refrain from moisturizers. Disuse of moisturizers is not suitable for all patients but worth to try if recovery from TSA is extraordinary delayed or the patient intends to withdraw from TSA as rapid as possible regardless of hardness. (It is my opinion. Dr .Sato recommends disuse of moisturizers more strongly than me from his own experience. Most dermatologists will think that disuse of moisturizers is crazy. I am between the two. )
Dr Fukaya’s statement that some patients whose recovery can be accelerated by disuse of moisturizers is interesting. For me, I guess I belong to that group of “some patient”.
Disuse of moisturizers is not suitable but it is worth a try on 2 conditions 1) tsw sufferer is experiencing delayed recovery 2)withdraw from TSA rapidly regardless of the hand landing he mentioned. Why does MW allow ones to withdraw from TSA rapidly (despite the hard landing?) My view is that your dead/damaged skin gets removed way quicker, compared to when your skin is sustained by artificial life support of moisturizer. His second answer below reveals more:
Hi Dr Fukaya, I hope you are well. I had a horrible rebound after starting TSW eight months ago but after two months of moisturizing I did MW and was finally able to heal over multiple skin breaks and get tremendous relief from all of my symptoms. I experienced a hard landing for 7-10 days. For many months after that my symptoms were far less severe due to not moisturizing. Many people I know experienced the same results as I did when doing MW. The “main” controversy in The US is over whether doing MW makes the TSW journey a more comfortable journey than doing TSW via using moisturizers. I understand it is up to the individual, but what are your observations about the comfort factor for your patients that did not moisturize during TSW compared to the ones that did? Did the ones that did TSW without the use of moisturizers have an easier recovery like I and others are seeing by not moisturizing?
Also, when you say “hard landing” do you mean for the whole duration of TSW, or just the initial transition from moisturizing to MW like I experienced? Thank you.
Thank you for taking time to answer Dr. Fukaya, I wanted to help ease the stress of some who feel they will not heal soon enough or find more comfort using moisture. 🙂
A few more questions for you.
Do people actually get “addicted” to moisturizer or just used to it?
Is four weeks the amount of time to adjust to no moisture and then after that it is comfortable?
Have you seen more or less patients go without moisturizer and what time frame difference do you think it was to heal for those who did not use it compared to those who did?
Did the ones not using moisturizer say they had a more comfortable recovery compared to those who used moisture?
Did some go back to moisture no matter how long they tried not using any?
Did any of your patients heal within one year by doing this method?
Most important, I appreciate that you are not pushy or dogmatic with people and understand their emotional state during this hard withdrawal. I only like to share and not advise as much as possible since each one suffering has to live with whatever decision they make. The questions are compiled from many in the forums and your answers are greatly appreciated. Thanks again. 🙂
Dan and Joey.
When I saw patients with TSA , I used to recommend the use of moisturizers (white petrolatum or zinc oxide ointment). So all photos of the procedures for example in
http://www.xtosis.com/chapter12.htm are of moisturizer use. Some patients did not seem to successfully withdraw from TSA (For example in http://mototsugufukaya.blogspot.jp/2013/06/how-long-does-rebound-period-continue.html). I admit some of such patients might be suffering from so called “moisturizer addiction”. In fact, I have an experience that one of my patients, who was hard to improve after TSW, visited Dr. Sato, was advised withdrawal from any moisturizer and successfully improved.
On the other hand, some patients dropped out from Dr. Sato’s way from its initial hardness. Such patients visited me and successfully withdraw from TS with the use of moisturizer. It is also a truth.
There are many obstacles which make natural healing of atopic dermatitis hard. Long term use of topical steroids and dependence to moisturizers are both difficult to be noticed. Such obstacles are different in patients.
Some of his patients took his advice to use moisturizers and did not heal. Dr Fukaya admitted that they might be suffering from moisturizer addiction. There are people who visited Dr. Sato, who advocated pure MW, and has successfully improved.
People do drop out of MW due to the difficulty. There are groups who heal with moisturizers too. What is clearer is that he acknowledge there is potential long term dependence to moisturizer which are difficult to be noticed.
How does one make the best out of this information? Be open about the possibility that you might be addicted or dependent on moisturizers, and that doing moisturizer withdrawal is another option that can help you heal faster. Stop being small minded about moisturizer withdrawal.