I posted this Probiotic Bacteria Don’t Make Eczema Better, And May Have Side Effects, Study Shows in a Facebook Group for discussion on potential iatrogenic effects of probiotics supplement as information for the group members to read and assess.
The post was removed from the group very quickly. Not surprising from a group that actively promotes their product, a brand of probiotics, to its members.
1) I’m neither against, nor supportive of probiotic supplementation. I’ve used them previously, and didn’t think that they helped. I do remember having more bowel irritations as suggested by the study.
2) On the issue of censorship, it is interesting that (I was informed) the post is removed because I was rude. All I did was to post information so that people can assess and judge whether there is some truth or not in such a study. I’d wish people look at the information, instead of forming unwarranted opinions of my character in sharing the information. My intent has always been clear, to post information of all sorts, so that they could hopefully, in some way or another, be helpful.
3) If the probiotics, especially those promoted in the FB group, are that helpful, such information being available to the readers won’t make a dent. If a product really works, the admins and the sellers should feel secure enough to continue selling despite the availability of such information being posted. People who have benefited from the product will speak out. People will discredit the study. People share their experiences so that more people can get a better value judgement out of this study. Are the admins really that insecure of their product that they need to actively remove such neutral information from their group?
4) Good access to quality information is good support. I learn more about my skin by reading things people posted, accessing information available on the internet, in books, in listening other’s experience. By removal of information, the admins are potentially removing a source of helpful knowledge to members of the group. This knowledge could help them directly or indirectly in the course of TSW recovery.
5) I only have one question for the admins – that presumably, if the study above is indeed true, (it may not even be required to be totally true, even if its partially true), would they recommend their product in good faith to the readers of the group? Especially a product that can potentially cause infections (not good with TSW) and gut problems (leaky gut anyone?). This is for them to answer, not me. People with different moral thresholds will respond differently.